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  • Tue 13 Nov 2018
  • Tue, November 13, 2018

Dr. Google

I see some parents struggle with being too sheepish with their physicians. Or they are so eager and willing to just take their doctor’s word for something. Yet they walk out full of more questions than answers without daring to be too “impolite” to ask. Or maybe it buys them time emotionally because deep down they are simply not ready to accept the fact that something may indeed be amiss with their child.  They may feel relief and view the glossing over as indisputable…

The Pediatrician And The Referral For Diagnosis

I’ve attended several meetings discussing the beginning stages of realization that a person’s child may need additional help and how this plays out in the office of the child’s doctor.  The meetings I’ve attended include ones with pediatricians and medical school professors, research focus groups, meetings with parents and discussions with teachers and educators regarding the experience of getting the initial referral from their child’s doctor.  People’s experiences run the gamut from nothing short of amazing to a complete lack of support.  Although, I have…

Most Doctors Unprepared To Care For Adults With Autism, Study Finds

Advocating for our loved ones is a never-ending endeavor. That includes choosing physicians to work with who truly understand or want to understand the needs that are specific to your family. Disability Scoop Reports, By Michelle Diament (Click the link above to read this article in full) A new survey finds many health care providers admittedly know little about how to care for adults with autism. Of 922 providers surveyed, 77 percent rated their ability to treat patients on the spectrum as…

Dear Doctor, A Clinicians Guide to Providing Feedback

On another Caboodle post in our recent news, we listed an article discussing findings where doctors admit to being largely unprepared to handle patients with autism.  Below is a guide by Autism Speaks with tools, tips, videos and suggestions regarding working with the families affected by autism.   I found my initial experiences with pediatric physicians to be frustrating.  It took several visits, with several doctors to finally find the few who truly understood not only the needs of our child, but the…

What It Means to be a Special Needs Mom by Kristi Campbell

I found this video inspiring when I first saw it and it became one of the first sources of strength for me in realizing I am not alone.   Although my work on this site is helping, I’m not someone who easily talks about my feelings or experiences. I Initially sent this video out to friends and family members to give them an idea of what I felt at the time and let it do the talking for me.   I also…