We fight conditions & disorders through knowledge & community.

  • Sat 23 Sep 2017
  • Sat, September 23, 2017
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Daring to Hope

I’ve always been a seeker of knowledge and information. When I became a mom it definitely kicked this trait into hyper-drive.  Of all the things I’ve learned and experienced, the special needs community was something I knew little to nothing about. By now, I’ve run the gamut on research and I’m still going strong. Some of the first meaningful pieces I found in regards to my personal healing came from other parents.  One of the first is by Kristi Campbell titled,…

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Grief, Our Silent Companion

Caregivers often silently carry around with them the constant, heavy feeling of grief. Sometimes ashamed of it, we may hide it from others. Burying it as deeply as possible in the hopes that no one else will see. Your grief can feel like a nagging and confusing failure, compounding the sorrow inside of you, but it doesn’t have to be that way. You are doing the best you can with the information you have available to you. Cut yourself some slack. Just because…

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Caregiver Fatigue and Crisis Prevention

It’s not always rainbows and lollipops…  Sometimes, despite your best efforts, you may not be able to pull yourself out of the fog.  Sleep deprivation, improper diet, sustained frustration and exhaustion are common with being a primary caregiver.  Circumstances like these can compound any feelings of solitude or helplessness, possibly leading to irrational or unsafe thoughts.  Far too many tragedies have occurred when someone waits too long to find others and seek help. You can view WebMD’s symptoms of Caregiver Burnout for further clarification…

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Depression, The Secret We Share by Andrew Solomon

Being a caregiver can trigger depression, sometimes with tragic consequences.  Acknowledging depression and learning more about the experience can be your life preserver in rough seas.  In this video, Andrew Soloman shares his experience with depression, discusses his findings and offers hope. He describes depression in a way that help clarify what depression is versus what it is not. If you are seeking to understand someone with depression, this video may shed some light on what your loved one is dealing with so…