We fight conditions & disorders through knowledge & community.

  • Thu 15 Nov 2018
  • Thu, November 15, 2018

The Anger Sharks Are Swimming

A surprise I encountered, which shouldn’t have been a surprise at all since people will be people (number 12 says it best for this example), is that not everyone in the autism community gets along.   I dove in head first, educating myself, turning over every stone and started to form my own opinions based on all the things I was learning.  At first, it was somewhat easy to ignore what was happening on the sidelines.  I saw some bickering here or…

Heart Conditions, Heart Attack or Stroke

After my dad had open heart surgery, our family went through a massive upheaval.  I wish we could have had these resources available to us then.  It was a difficult and trying time for all of us, to say the least. Nothing, and I mean nothing, went the way it was supposed to. The strong man we knew and loved, who was our leader, rock and foundation, was suddenly weak, vulnerable and needed our help. He was in crisis and as…

Fun Learning Tool for Pre-School Inclusion

Parents and Teachers: Let’s Collaborate to Advocate! Sesame Street has joined in to help our little ones understand themselves and their friends with autism. Check out some of the highlights below…     The ‘Amazing’ Song – Sesame Street and Autism As a parent, this seems like a great tool to start the conversation with the Pre-School crowd to make learning about each other’s differences fun and natural. What do you think, Pre-School, Inclusion, Teachers? Would your students watch this?  …

The Pediatrician And The Referral For Diagnosis

I’ve attended several meetings discussing the beginning stages of realization that a person’s child may need additional help and how this plays out in the office of the child’s doctor.  The meetings I’ve attended include ones with pediatricians and medical school professors, research focus groups, meetings with parents and discussions with teachers and educators regarding the experience of getting the initial referral from their child’s doctor.  People’s experiences run the gamut from nothing short of amazing to a complete lack of support.  Although, I have…

Law Enforcement and First Responders

Finding yourself in an unexpected situation or emergency that requires law enforcement or first responders has the potential to be a terrifying experience.  There are so many things in even an ordinary scenario with typical family dynamics that could go wrong or change at any moment. It is important to have a proper plan in place for the situations in our lives that are somewhat predictable or considered likely to happen at some point. For example, if you live in a tornado zone, you…