We fight conditions & disorders through knowledge & community.

  • Sat 23 Sep 2017
  • Sat, September 23, 2017
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Daring to Hope

I’ve always been a seeker of knowledge and information. When I became a mom it definitely kicked this trait into hyper-drive.  Of all the things I’ve learned and experienced, the special needs community was something I knew little to nothing about. By now, I’ve run the gamut on research and I’m still going strong. Some of the first meaningful pieces I found in regards to my personal healing came from other parents.  One of the first is by Kristi Campbell titled,…

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Dr. Google

I see some parents struggle with being too sheepish with their physicians. Or they are so eager and willing to just take their doctor’s word for something. Yet they walk out full of more questions than answers without daring to be too impolite to ask. Or maybe it buys them time emotionally because deep down they are simply not ready to accept the fact that something may indeed be wrong with their child.  They may feel relief and view the glossing over as…

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Be Yourself: Truth In Storytelling

One of my biggest struggles in sharing my story is the line between telling my story to help others while protecting my children’s privacy. When I ask others for help or seek out information online regarding writing, it typically translates to “be yourself.” I agree with that sentiment wholeheartedly but I also have a duty to my children not to make this completely about me. This is their story too. For now our experiences are irrevocably intertwined. They may choose when they…

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Grief, Our Silent Companion

Caregivers often silently carry around with them the constant, heavy feeling of grief. Sometimes ashamed of it, we may hide it from others. Burying it as deeply as possible in the hopes that no one else will see. Your grief can feel like a nagging and confusing failure, compounding the sorrow inside of you, but it doesn’t have to be that way. You are doing the best you can with the information you have available to you. Cut yourself some slack. Just because…

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Just Say No… To Mommy Wars

  I’m not a huge fan of using videos made or sponsored by a brand since there could possibly be an underlying agenda. Having said that, though, I couldn’t resist the message being delivered here.  We’re all caregivers to our children. We are doing the best we can, with what we have, based on what we know. (I also love that they included the dads in this video too) Be kind to one another. View a personal take on this here….